Holiday Time

The holidays are just around the corner and although you may have someone who is ill and possibly in the hospital, it is important to create family time now more than ever! I would suggest gathering together both at home and bedside to help everyone feel good. For those in the hospital a little cheer is always nice especially if …

My Helpers

I enjoy getting out in the community and sharing my story with others because I feel like I have the chance to make a difference in the lives of others.  But without my volunteers and helpers, I could not do all the things that I do. I recently attended the Pediatric Stroke Conference at CHOP, which was an amazing experience, …

Very Touching Moments

I have been thinking about my visit to the Children’s Hospital of Philadelphia the other day for the Pediatric Stroke Conference and what a very touching and emotional day it was for me. I was invited to speak and for me personally, it felt as though I came full circle when I stepped up on the stage to speak. After …

Pediatric Stroke Conference

I was at CHOP last weekend for the Pediatric Stroke Conference and what an amazing experience it was! I had the opportunity to meet the parents of young stroke patients as well as some of the patients themselves.

Remembering The Worst

I have vivid memories of the treatments I endured as a child, and there were moments that felt like torture. That is how I can describe all that I went through suffering with my disease for over two years. Things continued to be difficult with all the surgeries that followed after, and the complications of my pregnancy and beyond. I …

A Day at Home

Today is one of those days that I have a chance to spend the entire afternoon and evening “catching up.” I know that just about everyone looks forward to a day here and there when they can get through their piles of work be it housework, bills, emails etc. it feels nice to not have to keep looking at the …

What I am Doing Now

I am busy with both of my books lately and answering many many emails and requests for books to be donated to organizations. I spend a lot of time on both Facebook and Twitter, as well as exploring other sites as well. Keeping up with everything has proven quite challenging but rewarding. I am making a few appearances over the …

A Holiday Gift Idea

Have you had a chance to check out my comic book yet?  It is my same story but with a visual component that allows the reader to actually see my words come to life on the page.  It is a message of hope and survival and is meant to lift the spirits of others who are facing illness in their …