Dealing With Scars

There are two kinds of scars I can speak of. One is the scars on the outside, the surgical scars. I was lucky enough that even at my young age, my surgeons considered that I would be conscious of too man scars and for each surgical procedure cut a hairline away from the last scar. I only appear to have …

Who do you Talk to about your Struggles?

Since I was so young when I first got sick, I really did not know who to speak to or how to deal with what was happening to me. My one escape to share with someone was to create an imaginary friend. I recall my imaginary friend being there for me when things were tough and I felt all alone. …

The Diagnosis

Not knowing was the worst part for my parents and doctors but that did not last forever. One moment we are getting a final test, the next moment my parents world is turned upside down. Ulcertive Colitis was what was wrong. They could have just spoken a foreign language to my parents, since back in the last 60’s early 70’s …

What if they do not know what is wrong with you!

In the very beginning, age 7, my parents thought I was menistrating. The early doctors blamed our family life and family disfunctions as to why I was so ill. I did not care at this point who or what did it to me, I just wanted to be ok. Traveling from doctor to doctor is a chore for both patient …

How do you Deal with Feeling Different at School

I knew I was different, of course I had to, even at age 7. There I was perfectly normal, and the next thing I know I am unable to make it to the bathroom and having accidents in school. How humiliating! I was weak, frail, and took loads of pills every day. I missed school often, due to medical tests …

5 Ways to Stay Sane in the Hospital

I have a few different theories for this since I spent so much time in the hospital at so many different ages I want to share them all with you. As a child….. To pass the time when I was not too ill to do anything, I would spend a lot of time playing and doing crafts with the play …

How do you handle the pain?

I can only remember that I was always having terrible pains, but thank god as time goes on the memory is less and less vivid. What I can recall is that the pain was constant, and very very severe. As young as I was, it was something I still had to deal with. I would get stomach cramps and double …

What is the toughest part about growing up sick?

Because I was so young when I first became ill, (age 8), I had to go through childhood and my teen years with lots and lots of problems. I was too weak to play for long periods of time and to even take gym class. It was a combination of being sick or always recovering from some kind of surgery. …

What This Book Means to Me

This book has been in my thoughts for so many years prior to my actually writing it, that it feels a bit weird to be just about there. I didn’t expect to have the urge to write my story until I was much older and “retired”. But I soon found myself in my early 40’s and not working after selling …