Positive Attitude?

September is Leukemia and Lymphoma Awareness Month, but since it is also childhood Cancer Awareness Month, and since I try to focus on whatever the month is and raising awareness for each illness if possible, I figured that we could bring attention to Leukemia and Lymphoma in August. What I do want to share right now is that Leukemia, cancer …

Moving Home

When they say there is no place like home, they mean it! Four months in a rental home just was not my real home. Don’t get me wrong, the home we rented was really nice – it was comfortable and everything one would need for healing after going through what we have been through this past winter – but it …

Mommy Bags

For the past few years, I include my books in things called “Mommy Bags” pioneered by a lovely women from CHOP. She does this project on her own and has people donate personal items to her so that she can make up individual gift bags for about 30 moms who are (kind of) living at CHOP while their children undergo …

Hanukkah Reflection

Since we are moving forward through December and all of my favorite holidays, keeping it together during those times is a bit challenging. For me instead of dwelling on my recent issues I feel like a reflection on the past is in order. Try to stay focused during the holidays, even though you are dealing with someone who may be …

From My Heart

You have been through everything anyone could imagine one person can take. You have fought the battle, pretty much won the battle, and now where are you? It is now time to go back to life, be whoever you were before that terrible day, and try to put the past behind you. It is not that easy, and I say this from my heart. …

Losing a Loved One

We all know someone who has lost a battle with cancer. It may be a neighbor, relative, or a child either of a friend or family member. Whenever I experience a loss, I feel so many mixed emotions it is difficult to keep them all in check. I know that although we are making leaps and bounds with science and …

Keeping Up With Your Health

After you hear those wonderful words, ” You are complete with your treatments”, there are still things you need to think about. We look forward to hearing those words and savor the moment they finally ring into our ears.  But, just like the diagnosis, the journey doesn’t end in that split second. There still is after care to think about down the …

New Normal

Going through all that I did and coming out  basically healthy, with a few snags along the way, leaves a person the same, but different. I call it my “new normal”. Although when you look at me from the age of ten, after my first surgeries up to now, you see a perfectly normal person, or what the general public thinks is normal. …

Who Am I?

After all I went through as a child, it refused to let me be me even into adulthood. I even had a bout recently a few months ago after 20 years of being very healthy. I found myself asking, “Who was I and who did I become?” I am certainly the same person from before and after being ill, but I …

Living Life

I just wanted to be like the other children! That is all I wanted to do, be a normal kid. There is not anything wrong with that, is there? I refused to be different. I think that most kids feel the same way. Deep inside we all know that we either look, feel or are mentally different. I can only …