Volunteers
Funny how things work out for those of us who are patient.
‘Tis the season of Giving and Hope!
I will be at Bagel University this Saturday morning December 10th from 8 Am – 1 PM along with a volunteer and will have both versions of my book, Everything’s Okay as well as raffle tickets for the Bermuda cruise vacation which benefits my foundation. If you are thinking you may be in the area […]
Holiday Time
The holidays are just around the corner and although you may have someone who is ill and possibly in the hospital, it is important to create family time now more than ever! I would suggest gathering together both at home and bedside to help everyone feel good. For those in the hospital a little cheer […]
Keep Laughing
Dealing with caring for a sick child?
My Helpers
I enjoy getting out in the community and sharing my story with others because I feel like I have the chance to make a difference in the lives of others. But without my volunteers and helpers, I could not do all the things that I do. I recently attended the Pediatric Stroke Conference at CHOP, […]
Very Touching Moments
I have been thinking about my visit to the Children’s Hospital of Philadelphia the other day for the Pediatric Stroke Conference and what a very touching and emotional day it was for me. I was invited to speak and for me personally, it felt as though I came full circle when I stepped up on […]
Pediatric Stroke Conference
I was at CHOP last weekend for the Pediatric Stroke Conference and what an amazing experience it was! I had the opportunity to meet the parents of young stroke patients as well as some of the patients themselves.
Remembering The Worst
I have vivid memories of the treatments I endured as a child, and there were moments that felt like torture. That is how I can describe all that I went through suffering with my disease for over two years. Things continued to be difficult with all the surgeries that followed after, and the complications of […]
Book Updates
My book has been chosen to be placed in various gift baskets this Thanksgiving for families who are unfortunately fighting off cancer.
A Day at Home
Today is one of those days that I have a chance to spend the entire afternoon and evening “catching up.” I know that just about everyone looks forward to a day here and there when they can get through their piles of work be it housework, bills, emails etc. it feels nice to not have […]
